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29 pages 58 minutes read

Susan Sontag

The Way We Live Now

Fiction | Short Story | Adult | Published in 1986

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Background

Historical Context: Stigmatization in the Early Days of the AIDS Epidemic

The history of the AIDS epidemic in the 1980s in the US is central to the story. First identified as a rare lung infection in the CDC’s Morbidity and Mortality Weekly Report in June 1981, the virus that would become known as AIDS was marked by unusual infections, high fevers, and compromised immune systems. By August, the CDC began reporting on the demographics of confirmed cases of the same infection, stating that 94% of cases in which the patient’s sexuality was known—which is not the same as the total number of reported cases—occurred in people who identified as gay or bisexual men. While cases of infections in infants and transfusion patients were noted as early as 1981, gay and bisexual men were identified as the principal demographic at risk of AIDS. This led to the erroneous classification of AIDS as a “gay cancer” and to moralizing related to the disease (“A Timeline of HIV and AIDS.").

As Ellen says in the story, “everyone is at risk, everyone who has a sexual life, because sexuality is a chain that links each of us to many others, unknown others, and now the great chain of being has become a chain of death as well” (Paragraph 8). Contracting HIV/AIDS is not indicative of one’s sexuality; rather, it reflects cultural attitudes toward safe sex. Historically, prophylactics like condoms were primarily considered a method of birth control, not a means for reducing the risk of sexually transmitted infections (STIs). Prior to the AIDS epidemic, sexual partners who were not at risk of pregnancy, such as two men, were more likely to engage in unprotected sex and were thus disproportionately impacted by the spread of the virus.

When the protagonist’s friends congratulate themselves for not shunning him—saying, “no one’s afraid to hug him or kiss him lightly on the mouth” (Paragraph 8)—they outwardly assert their dedication to their friend despite his diagnosis (though perhaps in way that is more performative than genuine), and demonstrate that they understand how the disease is actually transmitted, unlike many others at the time. In the 1980s, people with AIDS were often shunned for fear they would spread the disease through casual contact. For example, an Indiana teenager named Ryan White was banned from his school after protesters angrily demanded his expulsion when he contracted AIDS via a blood transfusion.

Global figures like First Lady Barbara Bush and Princess Diana also attracted international media attention in the late 1980s and early 1990s for actions that were seen as groundbreaking: kissing a baby with AIDS and shaking hands—without wearing a glove—with an adult who had the disease. The characters’ actions are a deliberate rejection of these stigmatizing attitudes. However, they also echo the era’s attitudes when they distinguish between gay and straight friends in their reflections on the epidemic. When Jan breezily reflects that “[the protagonist] getting it has quite demystified the disease […] I don’t feel afraid, spooked, as I did before he became ill,” Quentin retorts, “It’s not the same for you […] it’s not the same for you as it is for me or Lewis or Frank or Paolo or Max” (Paragraph 8). Quentin singles out the gay members of the group, who perceive themselves as being at increased risk of infection. In this, the story faithfully represents the demographic divide in sexuality-based attitudes toward AIDS.

Although both men and women of all sexual orientations are at risk of contracting HIV/AIDS, the stigma against gay and bisexual men as potential carriers persists to the present day. For example, men who have sex with men continue to face unique barriers against blood donation. While its lifetime ban against blood donation by gay or bisexual men is no longer an official policy, as of 2023, the American Red Cross still requires men who have sex with men to abstain from all sexual activity for three months to be eligible for donation.

Philosophical Context: Storytelling as Activism

Activism calls for active campaigns directed toward change or reform on behalf of people who are oppressed, underrepresented, or denied a forum for voicing their concerns. It uses the currency of attention to broadly disseminate ideas with the goal of increasing understanding and encouraging sympathy for a specific cause. As an author or philosopher, Susan Sontag used her public position to campaign for human rights throughout her life, from her vocal opposition to the Vietnam War to her outspoken support of author Salman Rushdie when he was targeted with death threats, and the people of Sarajevo during the Bosnian War.

Public statements and physical efforts are readily identified as acts of activism, but Sontag demonstrates that storytelling functions as its own kind of activist support. This is the case with “The Way We Live Now,” an activist text that purposefully challenges the perception of terminal illness in general and AIDS in particular. Writing in a time of increasing panic and uncertainty, Sontag frames AIDS as a tragic normalcy: an epidemic affecting increasing numbers of individuals and their communities. Lewis cries, “It’s getting so when the phone rings I’m scared to answer because I think it will be someone telling me someone else is ill” (Paragraph 4). Betsy chides him for wanting to hide from reality as she points out “that seems to be the way we live, the way we live now” (Paragraph 4). In Betsy’s response, Sontag advocates for acceptance and encourages adaptation to a new normal. Rather than hiding from the realities of the epidemic, people must acknowledge that it necessarily changes and impacts their lives, regardless of whether they personally are ill or likely to become ill.

“The Way We Live Now” is a work of satire, but it also advocates for people with AIDS to be seen as loved and worthy of love—so much so that many of the characters in the story vie for the protagonist’s affection and grow jealous of the attention he bestows upon others. Sontag’s protagonist is not isolated and forgotten but remains a significant figure in the lives of at least two dozen other friends and family members. He continues to write and engage with the world, even during his hospitalizations. Published in an era when fear and hopelessness regarding the AIDS epidemic were perhaps at their most intense point, and when gay and bisexual men were often vilified as the cause of the disease, the story serves an activist role. It recognizes the full humanity of people learning to live with AIDS and sustain community in a time when those suffering from the disease were often isolated and rejected.

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